This is a web-site for patients and physicians interested in MDS or Myelodysplastic Syndromes. This web-site provides links to sources of information about MDS on the internet and provides access to discussion groups about MDS in your own language. Click on the logo (or flag), and the website of the organization (or the discussion forum) will appear.
The MDS Foundation supports MDS patients and research into MDS by arranging a triennial international symposium on MDS as well as one day patient meetings mainly in the USA, but also internationally. The MDS Foundation provides patient information in many languages.
The Aplastic Anemia & MDS International Foundation appear more focused on influencing law makers in the USA, but also serves patients worldwide - in English.
In Canada there is a patient support group related to the Aplastic Anemia & MDS International Foundation. Click on the above logo to access the website of this patient support group.
MDS Life Beyond Limits is an international campaign to raise the awareness about MDS. The information on the website is currently available in 5 different languages: English, German, Spanish, French and Italian.
In Belgium an MDS patient support group was established in early 2012 with a basis in Brugge. Currently there is no information about a web-site.
In Denmark an MDS patient support group is under establishment. Click on the logo below to access the preliminary website for this group.
If you are an MDS patient in Denmark or a relative of an MDS patient, and would like to be part of this effort, then write to Niels Jensen (by clicking on the name).
In France there is a patient support group with close links to the group of French specialist within MDS. The name of this group is Connaître et Combattre les Myélodysplasies. CCM has a members only section on its website.
In Germany a patient support group was established early in 2012. The name of the group is MDS Net Deutschland. Click on the above logo to access their website.
The UK patient support group currently appear to be the largest and best organized group. Click on the above logo to access the website of this patient support group.
Click of the flag of the country for which you want to read the discussion forum about MDS. Most forums allows unregistered users to read the discussion, however to actively participate you will normally have to register.